The orginal group(Lancashire dementiai voices) was founded in 2012 by *Alex Burton who was diagnosed with early onset Altzhiemers and having walked away from the memory assessment clinic found himself alone and not sure which way to turn. Over the next 12 months it became obvious that at least in Lancashire no post diagnostic support was available. In 2018 he has created an additional new network covering all of Lancashire and Cumbria. His hope is despite his condition, a comprehensive list of local support groups large and small can be found at local GP's, pharmacies and other Health care providers to at least identify different activities but at local level and not some faceless national organisation or charity who makes lots of donated money but rarely finds it way to local support groups.Alex has previously worked as an engineering consultant with his own business with the MOD(defence research) also engineering experience in a robotic setting working with De-Puy International on hip replacement testing. As a volunteer with Macmillan Cancer Support, NHS clinical Networks, Dying matters organisation, NHS Leadership Academy acting as advisor in all these any many more organisations. He has also presented at Westminster on the dementia care strategy both for National Palliative Care organisation and again represented Macmillan Cancer Support also at Westminster.
Originally a science teacher, Penny became interested in Alzheimer's after her grandparents developed the disorder. She was given the opportunity to undertake a PhD at Lancaster University, and afterwards continued her research into the biochemistry of Alzheimer's and other neurodegenerative conditions.
Penny has an extensive record of community involvement, giving regular talks on Alzheimer’s, Parkinson’s and dementia to interested groups. She recently founded Lancaster University’s ‘Defying Dementia’ campaign, to raise awareness of dementia, and to raise funds towards a compound developed at Lancaster, that has the potential to halt the progression of Alzheimer’s disease.
Having recently left the University’s research environment, she is now part of North West based MAC Clinical Research, with the ambition of progressing the Lancaster drug towards human Clinical Trials and beyond!
I have worked in the voluntary sector supporting people living with dementia and those who care for them for over 15 years. I have gained many skills, knowledge, experience and met some amazing people who have contributed to my passion to develop and share best practice in dementia care. I believe that, each one of us should receive genuine compassionate support that enables us to live life to the full. My special interests are: creating environments and culture that support people living with dementia, meaningful engagement and activities and End of life care. In 2017, I set up `Made in Haslingden’ with my friend Jane. We are passionate about supporting people living with dementia and our community so combined the two. We run a community craft group and a Man Shed at Haslingden Community Link.